HLH and MAS resources

This high-level flash card for healthcare professionals outlines some of the key differences between HLH and sepsis—2 conditions that may present similarly in patients.

This is a discussion guide for caregivers who may have questions about their child’s primary HLH diagnosis and the road ahead. It includes a list of questions that they may have about the process, which they can speak with their doctor about for more information.

The Dragon Book is a guide for patients and their caregivers that explains HLH in a way that is child-friendly. It also contains more in-depth information for caregivers who would like to have a deeper understanding of HLH.

This brochure provides an overview of MAS in Still’s disease for healthcare providers, detailing the pathophysiology, key biomarkers, diagnosis, and management goals involved in the disease.

If you are a clinician managing patients, connect with the HLH Crisis Hotline for expert consultation and guidance to help navigate suspected or confirmed HLH cases.

The HLH Crisis Hotline is an independent third-party resource providing consultation services for healthcare providers. It is not   a Sobi-sponsored consultancy service.

Watch a short video explaining how IFNγ drives dangerous hyperinflammation in HLH 
and MAS.