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HLH and MAS resources

Educational tools, support organizations, and expert information

Hemophagocytic lymphohistiocytosis (HLH) and macrophage activation syndrome (MAS) are serious hyperinflammatory conditions that may progress quickly and can be difficult to recognize. Because signs and symptoms may overlap with infection, malignancy, autoimmune disease, and other inflammatory conditions, timely education and access to reliable information are important for patients, caregivers, and healthcare professionals.

This page brings together educational materials and downloadable resources for healthcare professionals, patients, and caregivers who would like to learn more about HLH and MAS.

Downloadable resources

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Caregiver Discussion Guide
Caregiver Discussion Guide
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This is a discussion guide for caregivers who may have questions about their child’s primary HLH diagnosis and the road ahead. It includes a list of questions that they may have about the process, which they can speak with their doctor about for more information.

Download
HLH Podcast icon

The Investigating HLH podcast

Listen to expert insights about identifying, diagnosing, and managing HLH and MAS.

Listen now