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Resources about HLH

Access a variety of resources for you and your patients

Here you can find a collection of materials about HLH for healthcare professionals, patients, and their caregivers.

Downloadable resources

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Caregiver Discussion Guide

This is a discussion guide for caregivers who may have questions about their child’s HLH diagnosis and the road ahead. It includes a list of questions that they may have about the process, which they can speak with their doctor about for more information.

Transplant 101

This flash card provides a quick overview of bone marrow transplants to caregivers. It includes an explanation of what they are, when they are needed, and the process involved in preparing and receiving one.

Patient Discussion Guide

The patient discussion guide is a resource for patients and caregivers to track any questions or notes they may have during discussions with their doctors. It includes common questions they may have throughout different stages of their journey.