This is a discussion guide for caregivers who may have questions about their child’s HLH diagnosis and the road ahead. It includes a list of questions that they may have about the process, which they can speak with their doctor about for more information.
This flash card provides a quick overview of bone marrow transplants to caregivers. It includes an explanation of what they are, when they are needed, and the process involved in preparing and receiving one.
The patient discussion guide is a resource for patients and caregivers to track any questions or notes they may have during discussions with their doctors. It includes common questions they may have throughout different stages of their journey.