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Resources about HLH

Access a variety of resources for you and your patients

Here you can find a collection of materials about HLH for healthcare professionals, patients, and their caregivers.

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Investigating HLH podcast icon

Investigating HLH Podcast

Listen to Investigating HLH, a podcast series discussing various topics related to HLH. Learn more about the signs and symptoms, the diagnostic challenges, and strategies for managing this rare and fatal disease in your patients.

In each episode, an expert on HLH shares their insights and highlights important considerations for identifying and treating HLH. The fight against HLH is a difficult one, but knowing what to look for could save lives.

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Episode 1: Introduction to HLH

An Introduction to HLH

Adam Narloch speaks with Dr Michelle Hermiston to discuss the history of HLH and advances that have been made in understanding this rare disease.

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Episode 2: Diagnosing HLH

Diagnosing HLH

Adam Narloch speaks with Dr Ashish Kumar and Dr Scott Canna to discuss the challenges involved with diagnosing and managing HLH.

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Episode 3: Treating HLH

Treating HLH

Dr Saara Kaviany and Dr Blachy J. Dávila Saldaña discuss the overall treatment goals and strategies for patients with HLH.

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Episode 4: Monitoring Treatment Response

Monitoring Treatment Response

Kari Magee speaks with Dr Bethany Verkamp to discuss her recent research on evaluating treatment response to etoposide-based treatment in patients with HLH.

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Downloadable resources

To quickly sort through the available resources, use the filter below.

HLH Advocacy Guide

The Dragon Book is a guide for patients and their caregivers that explains HLH in a way that is child-friendly. It also contains more in-depth information for caregivers who would like to have a deeper understanding of HLH.

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